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NICE has written advice about good support for people with a learning disability and behaviour that challenges.
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The advice is for everyone who works with children, young people and adults with a learning disability, and their families and carers.
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We've produced an EasyRead version of our advice about good, safe support.
If you have a learning disability you may want to look at this with support from a family member, friend or carer.
What does the advice say?
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People sometimes behave in a challenging way when things are not right for them. This advice is about:
- making sure you always have a say in your care
- making a plan together to support your behaviour
- helping staff look out for things that might not be right for you and deal with problems early
- thinking about how your health might affect your behaviour
- making sure staff know how to keep you safe
- giving your family and carers support too.
What is the advice for?
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We want this advice to help people with a learning disability, and their families and carers, get the right care and support to live a good life.
Other advice from NICE
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NICE has also written advice about services for people with a learning disability and behaviour that challenges.
It goes with this advice about good support.
View the EasyRead version of our advice about services
There is also a short video explaining the advice.
Improving services for you
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NICE has also worked with experts to agree 12 things that services could do to make the most difference to people’s care. This is called a quality standard.
- There is 1 person in charge of all local services for people with a learning disability, who knows what people need.
- You have a detailed health check up every year.
- You are asked about the things that might make you behave in a way that challenges in an assessment. This is so staff can understand you and help stop it happening.
- You have 1 person that you can contact if you have questions or need help from different services.
- Your family or carers help plan your support and know what to do if you have a crisis.
- Parents or carers of children under 12 get special training.
- You can do an activity every day that you enjoy.
- You can get support close to home from specialist staff.
- You have choice about where to live.
- If staff need to restrict you (like holding you) to keep you safe they should write down what they do and talk about how to make things better for you.
- You are only given medicine to help your behaviour if you have talking therapy too.
- If you are taking medicine staff should check often if it is working and if you can stop taking it.
Where can I find out more?
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These people can give you more advice and support.
Their information is not written by NICE.
- Mencap, 0808 808 1111
- Foundation for People with Learning Disabilities
- The Challenging Behaviour Foundation
- Include Me TOO, 01902 711604/399888
- The Judith Trust.
Who wrote this guideline?
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NICE wrote this guideline with people who have a learning disability, their families and carers and staff who support them. All the decisions are based on the best research available.
ISBN: 978-1-4731-2908-5
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