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  • Question on Consultation

    Do you agree with the surveillance proposal not to update motor neurone disease: assessment and management with topics on the following areas:• Section 1.4 prognostic indicators • Section 1.5 organisation of care • Section 1.6 psychological support • Section 1.13 cough effectiveness • Section 1.14 non-invasive ventilation Please give a rationale for your decision

  • Question on Consultation

    Do you agree with changing the wording of recommendation 1.3.1:‘Be aware that people with MND and frontotemporal dementia may lack mental capacity. Care should be provided in line with the Mental Capacity Act 2005’ to:‘Be aware that people with MND, in particular those with concomitant frontotemporal dementia, may lack mental capacity. Care should be provided in line with the Mental Capacity Act 2005’Please give a rationale for your decision

  • Question on Consultation

    Are you aware of any issues related to inequalities for specific subgroups of the population?Please provide details on any issues
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MND exceptional review 2023 for consultation.docx

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MND exceptional review 2023 for consultation.docx

2023 exceptional surveillance of motor neurone disease (NICE guideline NG42): assessment and management