Diabetes in children and young people

Structure

Evidence of local arrangements to ensure that children and young people with type 1 or type 2 diabetes are offered access to mental health professionals with an understanding of diabetes.

Data source: Data can be collected from information recorded locally by provider organisations, for example from local referral pathways and service agreements.

Process

a) Proportion of children and young people with type 1 diabetes who are offered access to mental health professionals with an understanding of diabetes.

Numerator – the number in the denominator who have access to mental health professionals with an understanding of diabetes.

Denominator – the number of children and young people with type 1 diabetes.

Data source: Data can be collected from information recorded locally by healthcare professionals and provider organisations, for example from patient records.

b) Proportion of children and young people with type 2 diabetes who are offered access to mental health professionals with an understanding of diabetes.

Numerator – the number in the denominator who have access to mental health professionals with an understanding of diabetes.

Denominator – the number of children and young people with type 2 diabetes.

Data source: Data can be collected from information recorded locally by healthcare professionals and provider organisations, for example from patient records.

Outcome

a) Self-management of type 1 and type 2 diabetes.

Data source: No routinely collected national data for this measure has been identified. Data can be collected from information recorded locally by healthcare professionals and provider organisations, for example from patient records.

b) Adverse events (for example, severe hypoglycaemic episodes, diabetic ketoacidosis or self‑harm).

Data source: No routinely collected national data for this measure has been identified. Data can be collected from information recorded locally by healthcare professionals and provider organisations, for example from patient records.

c) Quality of life of children and young people with type 1 or type 2 diabetes.

Data source: Data can be collected from information recorded locally by healthcare professionals and provider organisations, for example from patient records and satisfaction surveys.

d) Satisfaction of children, young people and their family members or carers (as appropriate) with the intervention.

Data source: No routinely collected national data for this measure has been identified. Data can be collected from information recorded locally by healthcare professionals and provider organisations, for example from patient satisfaction surveys.

e) Anxiety or depression in children and young people with type 1 or type 2 diabetes.

Data source: No routinely collected national data for this measure has been identified. Data can be collected from information recorded locally by healthcare professionals and provider organisations, for example from patient records.

f) School performance or attendance of children and young people with type 1 or type 2 diabetes.

Data source: No routinely collected national data for this measure has been identified. Data can be collected from information recorded locally by healthcare professionals and provider organisations, for example from patient records and school attendance records.

Access

Multidisciplinary paediatric diabetes teams should include a psychologist and provide access to them in an appropriate timeframe. Each child and young person with type 1 or type 2 diabetes should have an annual assessment by their multidisciplinary team to decide whether they need support from the psychologist. [Adapted from NICE's 2015 full guideline on diabetes (type 1 and type 2) in children and young people and expert opinion]