Cerebral palsy in adults

You can now review and comment on this draft guideline.

The consultation closes on 28 August 2018 at 5.00pm

How to comment

1. Register your organisation or comment as an individual

If you’re commenting for an organisation, your organisation needs to be registered as a stakeholder.

Not eligible? Contact the stakeholder organisation that most closely represents your interests and pass your comments to them.

We can accept comments from individuals. These will be considered, but you won’t get a formal response and they won’t be posted on the NICE website. Wherever possible we encourage you to submit your comments through a registered stakeholder organisation.

2. Read the consultation documents

Documents to comment on:

• Short version of draft guideline – just the recommendations
• Evidence review A1 - Management of abnormal muscle tone: pharmacological treatments for spasticity
• Evidence review A2 - Management of abnormal muscle tone: neurosurgical procedures to reduce spasticity
• Evidence review A3 - Management of abnormal muscle tone: treatments to reduce dystonia
• Evidence review B1 - Assessing and monitoring complications and comorbidities: disorders of bones and joints
• Evidence review B2 - Assessing and monitoring complications and comorbidities: mental health problems
• Evidence review B3 - Assessing and monitoring complications and comorbidities: feeding and nutritional problems
• Evidence review C1 - Identifying and managing respiratory disorders associated with cerebral palsy: protocols for monitoring respiratory health
• Evidence review C2 - Identifying and managing respiratory disorders associated with cerebral palsy: assisted ventilation
• Evidence review C3 - Identifying and managing respiratory disorders associated with cerebral palsy: prophylactic treatments
• Evidence review D1 - Interventions that improve function and participation: vocational and independent living skills
• Evidence review D2 - Interventions that improve function and participation: physical function
• Evidence review D3 - Interventions that improve function and participation: electronic assistive technology
• Evidence review D4 - Interventions that improve function and participation: communication
• Evidence review E1 - Identifying pain, such as musculoskeletal and gastrointestinal pain
• Evidence review F1 - Configuration of services: service design
• Evidence review F2- Configuration of services: service design access to primary and secondary care
• Supporting documentation - NGA team list
• Supporting documentation - Glossary and abbreviations
• Supporting documentation - Methods chapter
• Supporting documentation - Health economics literature
• Economic model

If you want to review the economic model, please see 5. Economic models below and fill in the confidentiality form.

Other information about the consultation

• Equality impact assessment
• Developing NICE guidelines: how to get involved

3. Add your comments

• You must use this comments form.
• You must declare any links with, or funding from, the tobacco industry

If you share similar views with another organisation, send a joint response.

Make sure you consider:

• The areas that will have the biggest impact on practice and be challenging to implement
• How to help users overcome challenges

Developing NICE guidelines: how to get involved suggests some other areas to comment on.

4. Email the form to us

Email: CerebralpalsyAdults@nice.org.uk

Deadline: 28^th August 2018 at 5pm

5. Economic model

The developer has produced an economic model to support the guideline on cerebral palsy in adults.  To receive an executable version of this model, please submit a request to CerebralpalsyAdults@nice.org.uk with a signed copy of the confidentiality acknowledgement and undertaking form.

We will then send you a link to an executable version of the economic model by email. The deadline for returning your comments is the same as for the guideline consultation: 28^th August 2018 at 5pm.