Research recommendation(s) from an individual piece of guidance
- Guidance:
- Motor neurone disease: assessment and management
- Date issued:
Research recommendations coming out of this guidance
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Organisation of care:- Is a network-based model as effective as a clinic-based model to deliver multidisciplinary care to people with motor neurone disease (MND)?
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Cognitive assessment:- What is the impact of assessing for cognitive and behaviour change in people with motor neurone disease (MND) on clinical practice, the person and their family and carers? Does repeated assessment provide more benefit than assessment at a single point at diagnosis?
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Prognostic tools:- Is the amyotrophic lateral sclerosis (ALS) Prognostic Index an accurate predictor of survival in people with MND under NHS care in England and/or Wales?
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Saliva:- How is excessive drooling of saliva (sialorrhoea) managed in people with motor neurone disease (MND)?
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Nutrition:- Does a high calorific diet prolong survival of people with motor neurone disease (MND) if initiated following diagnosis or following initiation of feeding using a gastrostomy?
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Augmentative and alternative communication:- What is the current pattern of provision and use of augmentative and alternative communication (AAC) by people with motor neurone disease (MND) in England?