- Recommendation ID
- CG135/2
- Question
- Reasons for refusal for consent:- Why do families refuse to give permission for organ donation?
- Any explanatory notes
(if applicable) - Why this is important:- High-quality research using mixed methodology is needed to identify the reasons behind family refusal to see if there are factors that are changeable (for example, poor understanding of the process, medical mistrust, 'knee-jerk' response that is later regretted). The study could be, for example, a multi-centre observational study where all family members (those that did and those that did not give permission for their deceased loved one's organ donation) are followed up 6 months later.
Such research could determine whether those participants who gave permission for donation have higher perceived benefits scores, lower prolonged grief scores and higher quality-of-life scores than those who did not.
Source guidance details
- Comes from guidance
- Organ donation for transplantation: improving donor identification and consent rates for deceased organ donation
- Number
- CG135
- Date issued
- December 2011
Other details
| Is this a recommendation for the use of a technology only in the context of research? | No |
| Is it a recommendation that suggests collection of data or the establishment of a register? | No |