Individual research recommendation details

Recommendation ID

NG61/1

Question

Preferred place of care and place of death:- When planning and managing end of life care, what factors help children and young people with life-limiting conditions and their parents or carers to decide where they would like end of life care to be provided and where they prefer to die?

Any explanatory notes
(if applicable)

Why this is important:- When deciding the place of care and place of death, paediatric palliative care services sometimes assume that the main concern of parents and carers is that their child is able to die at home. However, the guideline committee's experience suggests that there are other significant factors for children and young people as well as their parents and carers (in particular, treatment of distressing symptoms) that may affect their choice of care setting. No research has been done to identify these factors, but it is important to recognise any reasons why a care setting might not be suitable. Understanding this would allow services to provide more personalised care, improve planning, and reduce waste and the cost of care.

Source guidance details

Comes from guidance

End of life care for infants, children and young people with life-limiting conditions: planning and management

Number

NG61

Date issued

December 2016

Other details