Information for the public
Velmanase alfa is available on the NHS. It is a possible treatment for the non-neurological signs and symptoms of mild to moderate alpha-mannosidosis if it is started in people under 18 years. Treatment can be continued once someone turns 18.
If you are not eligible for velmanase alfa but are already taking it, you should be able to continue until you and your doctor decide when best to stop.
Is this treatment right for me?
Your healthcare professionals should give you clear information, talk with you about your options and listen carefully to your views and concerns. Your family can be involved too, if you wish. See our webpage on making decisions about your care.
Questions to think about
- Can I keep taking velmanase alfa once I turn 18?
- How well does it work compared with other treatments?
- What are the risks or side effects? How likely are they?
- How will the treatment affect my day-to-day life?
- What happens if the treatment does not work?
- What happens if I do not want to have treatment? Are there other treatments available?
Information and support
MPS Society, 0345 389 9901 can give you advice and support.
You can also get support from your local Healthwatch.
NICE is not responsible for the quality or accuracy of any information or advice provided by these organisations.
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