Status In progress
Technology type Medicine
Decision Selected
Reason for decision Anticipate the topic will be of importance to patients, carers, professionals, commissioners and the health of the public to ensure clinical benefit is realised, inequalities in use addressed, and help them make the best use of NHS resources
Further information Topic in appraisal
Process STA Standard
ID number 6440

Provisional Schedule

Committee meeting: 1 03 September 2025
Expected publication 12 November 2025

Project Team

Project lead Jeremy Powell

Email enquiries

External Assessment Group Centre for Reviews and Dissemination and Centre for Health Economics, University of York

Stakeholders

Companies sponsors Plusultra (sirolimus gel)
Others Department of Health and Social Care
  NHS England
Patient carer groups Changing Faces
  Genetic Alliance UK
  Gene People
  Let’s Face It
  Myrovlytis Trust
  South Asian Health Foundation
  Specialised Healthcare Alliance
  The BHD Foundation
  Tuberous Sclerosis Association
Professional groups Association of Genetic Nurses & Counsellors
  British Association of Dermatologists
  British Dermatological Nursing Group
  British Geriatrics Society
  British Society for Gene and Cell Therapy
  British Society for Genetic Medicine
  General Medical Council
  Neonatal and Paediatric Pharmacists Group
  Primary Care Dermatology Society
  Royal College of General Practitioners
  Royal College of Nursing
  Royal College of Paediatrics and Child Health
  Royal College of Pathologists
  Royal College of Physicians
  Royal Pharmaceutical Society
  Royal Society of Medicine
  UK Clinical Pharmacy Association
  UK Kidney Association
Associated public health groups Public Health Wales
  UK Health Security Agency
Comparator companies None
General commentators All Wales Therapeutics and Toxicology Centre
  Allied Health Professionals Federation
  Board of Community Health Councils in Wales
  British National Formulary
  Care Quality Commission
  Cell and Gene Therapy Catapult
  Department of Health - Northern Ireland
  Great Ormond Street Hospital
  Healthcare Improvement Scotland
  Medicines and Healthcare products Regulatory Agency
  National Association of Primary Care
  National Pharmacy Association
  NHS Confederation
  Paediatric Neurodisability TSC Clinic, Alder Hey Children’s Hospital
  Paediatric Neurology TSC Clinic, University Hospitals Bristol
  Scottish Medicines Consortium
  TSC Team, Children’s Centre, Royal United Hospital Bath
  Welsh Government
  Welsh Health Specialised Services Committee
Relevant research groups British Skin Foundation
  Cochrane Skin Grup
  Dermatrust
  Genomics England
  MRC Clinical Trials Unit
  National Institute for Health Research

Timeline

Key events during the development of the guidance:

Date Update
22 October 2024 Invitation to participate
24 September 2024 - 08 October 2024 Consultation on suggested remit, draft scope and provisional stakeholder list of consultees and commentators
24 May 2024 In progress

For further information on our processes and methods, please see our CHTE processes and methods manual