A number of advisory committees, expert groups and academic units are addressing issues related to Creutzfeldt–Jakob disease (CJD) including developing the scientific basis of our understanding of the disease, improving decontamination practices across the NHS and minimising the risk of transmission. NICE has made every effort to coordinate with these groups to ensure that this guidance takes account of, and builds on, their work. Some members of the CJD advisory subcommittee are also members of other CJD committees, working groups and academic units. NICE has been represented on some of these groups.
The following is a list of some of the organisations in the UK that either fund surveillance, study or provide advice on the public health aspect of CJD: