People have the right to be involved in discussions and make informed decisions about their care, as described in NICE's information on making decisions about your care.
Making decisions using NICE guidelines explains how we use words to show the strength (or certainty) of our recommendations, and has information about prescribing medicines (including off-label use), professional guidelines, standards and laws (including on consent and mental capacity), and safeguarding.
1.15 Rehabilitation after spinal cord injury
This section covers specific rehabilitation for people after spinal cord injury. The recommendations in this section should be read together with all the recommendations in the rest of the guideline apart from those specific to limb injury, nerve injury or chest injury.
These recommendations focus on the rehabilitation and supportive needs of people with spinal cord injury (after initial acute assessment) who are not currently in a regional specialist spinal cord injury centre. See also the NICE guideline on spinal injury: assessment and initial management.
Rehabilitation after spinal cord injury – referral, assessment and general principles
1.15.1
For people with a spinal cord injury:
1.15.2
Seek advice from the regional specialist spinal cord injury centre outreach team throughout the person's inpatient stay and at discharge to support their rehabilitation.
1.15.3
A healthcare professional with appropriate clinical skills should complete an assessment using an American Spinal Injury Association (ASIA) chart as soon as possible after a spinal cord injury, and repeat this as clinically indicated.
1.15.4
Be aware that spinal cord injury may affect areas of physical function including bowel, bladder and sexual function, and seek specialist advice as appropriate (see also recommendation 1.2.6 in the multidisciplinary team rehabilitation needs assessment section).
1.15.5
Refer children and young people with a spinal cord injury:
1.15.6
For children and young people, monitor growth and nutrition throughout the rehabilitation process.
1.15.7
When discharge planning for children and young people after a spinal cord injury, ensure that meetings take place early and involve the child or young person, and their parents and carers (as appropriate), together with the local education authority, specialist play services and multidisciplinary teams involved in their care.
1.15.8
After hospital discharge, consider ongoing contact between the rehabilitation team and the person, and their family members and carers (as appropriate), with education and a structured review of progress in rehabilitation as part of outpatient follow-up. This could be offered by telephone or video link.
Bladder and bowel function
1.15.9
Assess and manage bladder function after a spinal cord injury as follows:
1.15.10
Regularly assess and manage bowel function after a spinal cord injury as follows:
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assess anal tone and sensation
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start and review a bowel management plan that includes laxatives, enemas, suppositories and manual evacuation, depending on the level and severity of the spinal injury.
1.15.11
Keep the person nil by mouth until their bowel function has been assessed because of the risk of neurogenic bowel stasis and aspiration pneumonia. Avoid unnecessary delays to assessing bowel function to avoid prolonged periods of nil by mouth.
1.15.12
For younger children, ask their parents and carers (as appropriate), about their pre-injury continence skills, and take their age and ability into account when assessing and managing bladder and bowel function.
Respiratory function, swallowing and speech
1.15.13
Keep the person nil by mouth until their risk of aspiration has been assessed (see recommendation 1.11.51).
1.15.14
Be aware that people with cervical spine injuries and those managed on flat bed rest, are particularly at risk of swallowing and speech difficulties and should be assessed early for risk of aspiration.
1.15.15
Assess and manage respiratory function (taking into account age and ability when assessing children and young people) as follows:
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use spirometry to measure vital capacity in line with the NICE guideline on spinal injury
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consider prophylactic respiratory support with, for example, active cycle of breathing techniques, incentive spirometry, intermittent positive pressure breathing (IPPB) or non-invasive ventilation (NIV), to maintain forced vital capacity (FVC) and prevent chest complications
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consider use of cough-assist techniques or devices.
1.15.16
Consider critical care management for people with a high-level spinal injury.
1.15.17
Assess voice quality and refer to a speech and language therapist and/or ear, nose and throat specialist as needed.
Preventing complications
1.15.18
Assess skin and pressure care after a spinal cord injury as follows:
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start a 24‑hour positioning and turning programme and use a pressure mattress if appropriate (ensuring that the spinal column has been assessed as mechanically stable) or indicated and
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give information about skin protection for people with sensory deficits.
1.15.19
Be aware of the risk of autonomic dysreflexia, and treat it as a medical emergency.
1.15.20
Be aware that most people who have had a spinal cord injury will develop orthostatic hypotension, which can affect their participation in rehabilitation. Consider interventions to optimise blood pressure, for example, medication review, graduated positioning, abdominal binders and compression stockings.
Maintaining mobility and movement
1.15.21
For people with a spinal cord injury who are using a spinal orthosis (for example, cervical collar or thoraco-lumbar spinal orthosis), regularly assess them for complications such as pain, pressure sores, swallowing or breathing difficulties (particularly in older people or those with dementia or delirium).
1.15.22
If spinal orthoses are causing side effects or are significantly affecting the person's engagement with rehabilitation, inform the relevant surgical team.
1.15.23
Maintain joint range of motion after a spinal cord injury and consider early use of splints and orthoses.
1.15.24
Seek specialist advice about hand splints for people with a higher level cervical spinal injury to maintain tenodesis grasp and release ability where indicated; for example, do not splint into wrist extension if there is C6 involvement.
1.15.25
Consider interventions (for example, progressive sitting, tilt table) to increase mobility and aid early sitting as soon as possible after a spinal cord injury.
1.15.26
Consider additional techniques and specialised equipment (for example, functional electrical stimulation, gait orthoses, bodyweight-supported gait training and robotic devices) to promote mobility, upper limb function and independent walking.
1.15.27
Assess people's needs and refer them to specialist services without delay if assistive technology, such as environmental control systems, is needed.
1.15.28
For adults, treat spasticity to prevent losing range of joint movement and avoid contractures.
1.15.29
For adults, consider oral medications to treat spasticity or botulinum toxin type A targeted muscle injections, depending on the clinical circumstances.
In January 2022, botulinum toxin type A was an off-label use for some of the available brands. See individual summaries of product characteristics and NICE's information on prescribing medicines.
1.15.30
Stop oral medications and targeted muscle injections for spasticity if there is no benefit at the maximum tolerated dose. (Explain to the person that special precautions may be needed when stopping certain medicines.)
1.15.31
If spasticity is causing significant impairments in mobility, posture or function, and initial treatments are unsuccessful, refer the person to a multidisciplinary team experienced in the management of spasticity for assessment and treatment planning.
1.15.32
For children and young people, assess spasticity and follow the recommendations in the NICE guideline on spasticity in under 19s.
1.15.33
Be aware that pre-pubertal children have a high risk of early or late onset kyphoscoliosis, so monitor their spinal shape and curvature at regular intervals and refer early for specialist assessment if needed.
Low mood and psychological support
1.15.34
Be aware that there is significant risk of low mood and psychological trauma for people with spinal injury, and that this may have an impact on rehabilitation.
1.15.35
Consider psychological support after spinal cord injury, and ensure that the multidisciplinary team has access to a practitioner psychologist with appropriate expertise in physical trauma and rehabilitation, ideally with experience of working with people with spinal cord injury.
1.15.36
For children and young people, the team around the child should actively monitor for any emerging emotional difficulties as the child or young person grows and develops (for example, moving schools, puberty and emotional relationships).
1.15.37
Take into account the long-term psychological impact of change in body image as a result of injury for all people and for children and young people as they grow.
1.17 Rehabilitation after chest injury
This section covers specific rehabilitation for people after chest injury. The recommendations in this section should be read together with all the recommendations in the rest of the guideline apart from those specific to limb injury, spinal cord injury or nerve injury.
1.17.1
Start rehabilitation after chest injury as soon as possible to optimise respiratory function and prevent deconditioning.
1.17.2
Assess pain regularly and provide adequate analgesia to allow people to be able to breathe deeply, cough, start moving around early and participate in rehabilitation activities.
1.17.3
If oral or intravenous analgesia is inadequate to enable people to breathe deeply, cough or start engaging in rehabilitation, consider early neuraxial (for example, epidural catheter) or regional (for example, paravertebral, erector spinae plane or serratus anterior blocks) analgesia delivered by an appropriately qualified healthcare professional.
1.17.4
Encourage people with chest trauma to start moving around as soon as it is safe to do so, to optimise respiratory function and prevent deconditioning.
1.17.5
Offer a range of rehabilitation therapies to prevent atelectasis and promote deep breathing and secretion clearance. Therapies may include:
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supported cough to brace chest wall
-
active cycle breathing technique
-
incentive spirometry
-
portable intermittent positive pressure breathing (IPPB) devices.
1.17.6
Be aware that stiffness of the upper limbs is a common complication of chest and rib injury on the affected side.
1.17.7
The multidisciplinary team should discuss the risks and benefits of the use of spinal orthoses in people with a combination of spine injury and rib fracture.
1.17.8
Prevent stiffness of the upper limbs with range of movement exercises and advice about maintaining function. Encourage children to play to maintain their range of movement.
1.17.9
Give people information about what they can do to help themselves return to their normal activities of daily life (for example, how to increase their exercise tolerance), and how to seek help if they are worried about problems such as:
-
pain
-
shortness of breath
-
fatigue
-
cough.
1.17.10
Assess adults presenting with rib fractures for their risk of fragility fracture in line with NICE's guideline on osteoporosis.
1.17.11
If people have complex chest injuries that affect communication and swallowing skills, consider referral to speech and language therapy.
1.17.12
Consider assessing children and young people with rib fractures for bone density disorder and for the possibility of non-accidental injury (see recommendation 1.1.13 on safeguarding).
Terms used in this guideline
Complex rehabilitation needs
Complex rehabilitation needs cover multiple needs due to traumatic injury or injuries (polytrauma), and will involve coordinated multidisciplinary input from 2 or more allied health professional disciplines.
Controlled motion device
A device that gently flexes and extends the knee joint (usually after surgery) to allow the joint to bend without the person needing to exert any effort. Sometimes called a continuous passive motion machine.
Key worker
A key worker is a named member of clinical staff (for example, a senior nurse, physiotherapist or occupational therapist) assigned at each stage of the care pathway who coordinates the person's rehabilitation and care; this may continue post-discharge. They act as a single point of contact for the person and their family and carers, and will support liaison with other services, such as social care. The person who fulfils this role may be different along the pathway, for example, following hospital discharge. This role may also be performed by case managers or case coordinators, who would coordinate care as well as liaise with insurers and legal teams, particularly following discharge.
For major trauma, the role of key worker is defined further in recommendation 1.6.3 in the NICE guideline on major trauma: service delivery.
Neurovestibular disorders
Dizziness or problems with balance caused by damage to parts of the inner ear and/or the brain that process the sensory information involved with controlling balance and eye movements.
Orthostatic hypotension
Low blood pressure on changing position from lying to sitting, and sitting to standing.
Pre-amputation rehabilitation assessment and consultation
This follows the principles of the initial rehabilitation assessment in the section on assessment and early interventions for people with complex rehabilitation needs, and also takes into account implications for rehabilitation such as recovery timescales, quality of life and goal setting for different surgical options that may include amputation of all or part of the limb, or reconstructive surgery of the limb. Decisions about surgical interventions would affect the kind of rehabilitation interventions and therapies the person would need, the timescales involved and their personal goals.
Rehabilitation coordinator
Rehabilitation coordinators are rehabilitation specialists, for example, allied health professionals such as physiotherapists, occupational therapists, speech and language therapists, or clinicians who play an active role in the multidisciplinary team. They are usually responsible for decisions about rehabilitation treatment options at the beginning of the pathway and for the implementation of the pathway, including referral or transfer to other services. They are usually part of the team that delivers the rehabilitation care, and the lead contact for the person receiving care.
Rehabilitation plan
This may be in the form of a rehabilitation prescription. It may also come in different versions such as the rehabilitation passport, which is a patient-held document, and may be a simplified version of the plan. It is carried with the person and also communicated between rehabilitation teams and updated accordingly and used to document information about injuries and rehabilitation treatments in an accessible format.
Specialised rehabilitation services
Specialised elements of care pathways would include options for people with complex rehabilitation needs, for example, level 1, level 2a and level 2b units within a local area.
Strengths-based approach
Strengths-based (or asset-based) approaches focus on the person's strengths (including personal strengths, and social and community networks) and not on their deficits. Strengths-based practice is holistic and multidisciplinary, and works with the individual person to promote their wellbeing.
Team around the child
A group of professionals who work with an individual child or young person with a disability or complex needs who come together to share information and agree a plan – along with parents and carers – to meet the child's needs. The emphasis should be on the needs of the child and the aim is to provide joined-up support.
Trauma coordinator
This person would work closely with the multidisciplinary team to coordinate the patient pathway between relevant specialties involved in the treatment, including acute surgical and medical teams and rehabilitation, from admission to discharge, particularly for people with highly complex traumatic injuries and rehabilitation needs. They offer clinical advice and sometimes this role is performed by a nurse and is sometimes called a nurse coordinator. This role may also include the responsibilities of a key worker, liaising with family and carers, especially in the early stages of the pathway.
Traumatic injury
This includes multiple, major and severe injuries, sometimes referred to as polytrauma, and any musculoskeletal, visceral, nerve, soft tissue, spinal or limb injury that requires admission to hospital at the time of injury.
Vocational therapy
Focuses on the rehabilitation interventions needed to help people with long-term health conditions or disabilities return to or stay in work, education or training. This may involve adapting working conditions, job roles or retraining.