Evidence
Overview of 2021 surveillance methods
Overview of 2021 surveillance methods
NICE's surveillance team checked whether recommendations in NICE's guideline on transition between inpatient mental health settings and community or care home settings remain up to date.
The surveillance process consisted of:
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Feedback from topic experts via a questionnaire.
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A search for new or updated Cochrane reviews, national policy, and legislation.
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Consideration of evidence from previous surveillance.
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Examining related NICE guidance and quality standards and NIHR signals.
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A search for ongoing research.
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Examining the NICE event tracker for relevant ongoing and published events.
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Assessing the new evidence against current recommendations to determine whether or not to update sections of the guideline, or the whole guideline.
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Consulting on the proposal not to update the guideline with stakeholders.
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Considering comments received during consultation and making any necessary changes to the proposal.
For further details about the process and the possible update decisions that are available, see ensuring that published guidelines are current and accurate in developing NICE guidelines: the manual.
Evidence considered in surveillance
Search and selection strategy
We conducted an initial search for relevant Cochrane reviews and national policy and legislation in this area. The results of these searches, alongside information suggested by topic experts, was deemed sufficient to proceed with the surveillance review. Furthermore, the focus of the NICE guideline is around service delivery, with a social care element, both of which are more driven by policy and legislation. As such no additional evidence searches were undertaken.
See appendix A for details of all evidence considered, and references.
Ongoing research
We checked for relevant ongoing research; of the ongoing studies identified, 3 studies were assessed as having the potential to change recommendations. Therefore, we plan to regularly check whether these studies have published results and evaluate the impact of the results on current recommendations as quickly as possible. These studies are:
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The MILESTONE study: improving transition from child to adult mental health care (ISRCTN83240263).
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Peer support for discharge from inpatient to community mental health services (ISRCTN10043328).
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Transitional discharge interventions for people with serious mental illness (Cochrane Database of Systematic Reviews; 2019; no. 12).
Intelligence gathered during surveillance
Views of topic experts
We considered the views of topic experts who were recruited to the NICE Centre for Guidelines Expert Advisers Panel to represent their specialty. For this surveillance review, topic experts completed a questionnaire about developments in evidence, policy and services related to the guideline.
We sent questionnaires to 27 topic experts and received 5 responses. The experts who responded included a social worker, a consultant geriatrician, 2 general practitioners, and a representative of a homelessness charity.
Two topic experts thought the NICE guideline should be updated, 2 did not and 1 did not respond. The experts raised issues around homelessness (see equalities), funding and the interface between mental and physical health.
One expert commented that the level of suicide 1 week after discharge was concerning, a stakeholder also commented on this issue and highlighted updated evidence (see reasons for the decision). This was considered during the 2017 exceptional review and the evidence was found to be consistent with recommendations 1.6.7 and 1.6.8 in the NICE guideline.
Another expert commented that there have been changes to legislation which were identified during this surveillance review and another that the surveillance review should focus on the issue of out of area inpatient placements among children. Recommendations 1.3.10 to 1.3.12 in the NICE guideline cover minimising out of area admissions and highlight the increased risk associated with these admissions.
The experts raised issues around homelessness. The NICE guideline currently provides recommendations on discussing housing arrangements before discharge (recommendation 1.5.7) and providing additional support to homeless people (recommendation 1.5.8). However, the recommendations do not highlight the Homelessness Reduction Act 2017 and as such a cross reference will be added to section 1.5 to highlight the Act. No additional changes to the NICE guideline were deemed necessary as NICE is currently developing a guideline on integrated health and social care for people experiencing homelessness.
Implementation of the guideline
Topic experts highlighted that mental health services were struggling to meet basic demands and implementing the recommendations can be difficult. We plan to share these comments and the reports we have identified with NICE's Impact and Adoption team.
Other sources of information
We considered all other correspondence received since the NICE guideline was published. This included a letter from MIND highlighting new evidence about follow-up times that had been considered as part of the 2017 exceptional review. We also considered a request to add a cross reference to NICE's guideline on excess winter deaths and illness and the health risks associated with cold homes. However, the recommendations in that NICE guideline were assessed as not being relevant to NICE's guideline on transition between inpatient mental health settings and community or care home settings. Therefore such a cross reference is not proposed.
Views of stakeholders
Stakeholders are consulted on all surveillance reviews except if the whole guideline will be updated and replaced. Because this surveillance proposal was not to update the guideline, we consulted with stakeholders.
Overall, 6 stakeholders commented, 2 agreed with the decision to not update. Stakeholders comprised representatives from NHS England, 2 charities, and 3 royal colleges. They highlighted issues with specific groups (see equalities) and the impact of COVID-19 on mental health services. They specifically identified that it has resulted in rapid discharge practices during periods of high COVID-19 incidence and that it poses a risk to the physical and mental health of healthcare staff. Stakeholders also commented that there is uncertainty about the risks and benefits of using telemedicine with people with mental health conditions.
A stakeholder also commented that everyone discharged from mental health services should be followed up within 48 hours and highlighted new evidence from the National Confidential Inquiry into suicide and safety in mental health (NCISH). Recommendations 1.6.7 and 1.6.8 in the NICE guideline recommend follow-up within 7 days unless a risk of suicide has been identified in which case follow-up should be within 48 hours. A 2017 exceptional surveillance review which considered findings from the NCISH report covering the period 2004 to 2014 concluded the results were 'largely consistent' with the current recommendations. Findings from a more recent NCISH report covering 2007 to 2017 highlighted by the stakeholder, are consistent with findings considered during this exceptional review and we therefore assessed the recommendations as remaining valid.
See appendix B for full details of stakeholders' comments and our responses.
See ensuring that published guidelines are current and accurate in developing NICE guidelines: the manual for more details on our consultation processes.
Equalities
Topic experts and stakeholders commented that transition is challenging for people with complex needs and that the NICE guideline should include more recommendations tailored for this group.
Recommendations 1.2.4, 1.2.5 and 1.6.4 are about providing more resources for people in this group. It also recognises the lack of evidence in this area and makes research recommendations 1 and 2 about care and support for people with complex needs which remain valid following this surveillance.
People who misuse alcohol were also thought to be a specific subgroup as there may not be continuity of services in the community. The care provided in the community is beyond the scope of this NICE guideline. However, NICE does have guidelines on coexisting severe mental illness and substance misuse: community health and social care services, and coexisting severe mental illness (psychosis) and substance misuse: assessment and management in healthcare settings.
A topic expert highlighted the specific challenges faced by homeless people in contact with mental health services. Recommendation 1.5.8 in the NICE guideline is about homelessness but a cross reference will be added to the Homelessness Reduction Act 2017 to emphasise the duty of care to those who are homeless. NICE is currently developing a guideline on integrated health and social care for people experiencing homelessness therefore no further changes to the NICE guideline on transition between inpatient mental health settings and community or care home settings are proposed.
A stakeholder commented that unaccompanied asylum-seeking children (UASC) should be named in the NICE guideline. The NICE guideline scope accommodates this group. As the NICE guideline links to making decisions using NICE guidelines, which includes links to government guidance about safeguarding that includes UASC, no further changes are proposed.
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