Quality standard

Quality statement 1: Initial education in adrenaline auto-injector use

Quality statement

People who are prescribed an adrenaline auto-injector after emergency treatment for anaphylaxis are given training in how and when to use it before being discharged. [2016]

Rationale

Adrenaline auto-injectors (AAIs) should be offered to people after emergency treatment for anaphylaxis, as an interim measure before they have a specialist allergy service appointment. It is important to use an AAI as soon as possible if an anaphylactic reaction is suspected. Ensuring that people know when and how to use their specific device, and encouraging them to get familiar with it by practising with a trainer AAI, will help ensure timely and correct use if they have another anaphylactic reaction.

Quality measures

The following measures can be used to assess the quality of care or service provision specified in the statement. They are examples of how the statement can be measured, and can be adapted and used flexibly.

Process

Proportion of people prescribed an AAI after emergency treatment for anaphylaxis who are given training in how and when to use it before being discharged.

Numerator – the number in the denominator who are given training in how and when to use an AAI before being discharged.

Denominator – the number of people prescribed an AAI after emergency treatment for anaphylaxis.

Data source: Data can be collected from information recorded locally by healthcare professionals and provider organisations, for example, from patient records.

What the quality statement means for different audiences

Service providers (such as emergency departments, and paediatric and adult medical services) ensure that healthcare professionals can provide brand-specific training in how and when to use AAIs for people who are prescribed one after emergency treatment for anaphylaxis. They also ensure that information on using AAIs and lying down flat and raising their legs after using them is available to give to people. Information should include how to get a trainer auto-injector from the manufacturer to practise with.

Healthcare professionals (such as emergency department staff, and members of paediatric and adult medical services) provide brand-specific training for people prescribed an AAI after emergency treatment for anaphylaxis, before they are discharged. They demonstrate correct use and provide an opportunity for the person to practise using a training device. They also give people information about how and when to use it, including lying down flat and raising their legs after using it even if they are feeling better. They encourage the person to practise at home by getting a trainer auto-injector from the manufacturer and remind them that AAIs expire and to check the date when they collect their prescription.

Commissioners ensure that services provide brand-specific training and information on how and when to use AAIs for people who have been prescribed one after emergency treatment for anaphylaxis.

People who are prescribed an adrenaline auto-injector (AAI) because they have had emergency treatment for anaphylaxis (a severe, life-threatening allergic reaction) are shown how to use their specific brand of AAI before they go home from hospital. This includes practising using a training injector, being given information that explains how and when they should use it, and to ensure they lie down flat and raise their legs when they have used it, even if they are feeling better. They are also encouraged to get a trainer auto-injector from the manufacturer so they can practise at home.

Source guidance

Anaphylaxis: assessment and referral after emergency treatment. NICE guideline CG134 (2011, updated 2020), recommendation 1.1.11

Definitions of terms used in this quality statement

Training in when to use an adrenaline auto-injector

There are a number of possible signs of anaphylaxis. People should be informed that any 1 of the following signs or symptoms is enough to warrant immediate use of an AAI:

  • Airway (A): swelling in the throat, tongue or upper airways (tightening of the throat, hoarse voice, difficulty swallowing).

  • Breathing (B): sudden-onset wheezing, breathing difficulty, noisy breathing.

  • Circulation (C): dizziness, feeling faint, sudden sleepiness, tiredness, confusion, pale clammy skin, loss of consciousness.

People should be informed that if they experience any of the above signs or symptoms, they should not delay in administering an AAI, even if they also have signs that they would normally associate with a milder reaction (such as an itchy throat or swelling of the lips). They should take notice of severe signs and symptoms, regardless of what else is happening. If in any doubt about severity, or if previous reactions have been severe, an AAI should be used.

If there is no improvement 5 minutes after the first injection, or if there is a deterioration after an initial improvement, the second AAI should be used while waiting for the ambulance. Other medicines such as antihistamines and inhalers can be given as necessary.

The Medicines and Healthcare products Regulatory Agency (MHRA) has produced a video for people with anaphylaxis explaining what they should do if they experience an episode of anaphylaxis. This link can be provided to people when they are being shown how and when to use an AAI. [Adapted from the MHRA and Commission on Human Medicines' Public Assessment Report of the Commission on Human Medicines' Adrenaline Auto-injector Expert Working Group: Recommendations to support the effective and safe use of adrenaline auto-injectors and MHRA's guidance on adrenaline auto-injectors]

Training in how to use an adrenaline auto-injector

This includes:

  • Ensuring the person knows they should carry 2 AAIs with them at all times.

  • Providing a brand-specific demonstration of using an AAI and practise using a training device.

  • Encouraging the person to get familiar with the device by getting a trainer AAI from the manufacturer to practise with.

  • Providing advice on lying down after using the AAI (or propping themselves up slightly if they are struggling to breathe). It is imperative to avoid any sudden change in posture, and above all, the person must not stand up, or sit in a chair, even if they are feeling better because of the risk of cardiac arrest.

[Adapted from NICE's guideline on anaphylaxis, recommendation 1.1.11, and the MHRA and Commission on Human Medicines' Public Assessment Report of the Commission on Human Medicines' Adrenaline Auto-injector Expert Working Group: Recommendations to support the effective and safe use of adrenaline auto-injectors (2021)]

Key information for people who have had an anaphylactic episode

What to do in an emergency:

  • Use your AAI immediately if you have any signs of anaphylaxis. If in doubt, use. Do not delay.

  • Dial 999 – say anaphylaxis ("ana-fill-axis") – straight after using your auto-injector.

  • Lie down and raise your legs.

  • Sit up if you are struggling to breathe, but do not change position suddenly.

  • Lie down again as soon as you can.

  • Stay lying down even if you are feeling better.

  • You must not stand up even if someone encourages you to.

  • Use your second AAI if you have not improved after 5 minutes.

Be prepared:

  • Carry 2 AAIs with you at all times.

  • You must use your AAI as soon as you notice any signs of anaphylaxis.

  • Make sure you know beforehand what the signs are so you can act swiftly.

  • Make sure you know how to use your AAI before you need to. Get familiar with it. Get a trainer AAI from the manufacturer. Practise. If you change brand, get familiar with the new one. Each one is used differently.

[Adapted from the MHRA and Commission on Human Medicines' Public Assessment Report of the Commission on Human Medicines' Adrenaline Auto-injector Expert Working Group: Recommendations to support the effective and safe use of adrenaline auto-injectors (2021)]

Equality and diversity considerations

People should be provided with information about using AAIs that they can easily read and understand themselves, or with support, so they can communicate effectively with health and social care services. Information should be in a format that suits their needs and preferences. It should be accessible to people who do not speak or read English, and it should be culturally appropriate and age appropriate. People should have access to an interpreter or advocate if needed.

For people with additional needs related to a disability, impairment or sensory loss, information should be provided as set out in NHS England's Accessible Information Standard or the equivalent standards for the devolved nations.