Fenfluramine for treating seizures associated with Lennox–Gastaut syndrome in people 2 years and over

Fenfluramine (Fintepla) is available on the NHS as a possible add-on treatment for seizures associated with Lennox–Gastaut syndrome in people 2 years and over.

The frequency of drop seizures should be checked every 6 months while taking fenfluramine. If their frequency has not reduced enough (at least 30%) compared with before starting treatment, fenfluramine should be stopped.

Is this treatment right for me?

Your healthcare professionals should give you clear information, talk with you about your options and listen carefully to your views and concerns. Your family can be involved too, if you wish. See our webpage on making decisions about your care.

Questions to think about

• How well does it work compared with other treatments?
• What are the risks or side effects? How likely are they?
• How will the treatment affect my day-to-day life?
• What happens if the treatment does not work?
• What happens if I do not want to have treatment? Are there other treatments available?

Information and support

Tuberous Sclerosis Association (0808 801 0700) can give you advice and support.

You can also get support from your local Healthwatch.

NICE is not responsible for the quality or accuracy of any information or advice provided by these organisations.

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