Efanesoctocog alfa for treating and preventing bleeding episodes in haemophilia A in people 2 years and over

Efanesoctocog alfa (Altuvoct) is available on the NHS. It is a possible treatment for treating and preventing bleeding episodes in people 2 years and over with haemophilia A (congenital factor VIII deficiency) if it is severe (that is, their factor VIII activity level is less than 1%).

If you or your child are not eligible for efanesoctocog alfa but are already having it, you should be able to continue until you and your healthcare professional decide when best to stop.

Is this treatment right for me or my child?

Your healthcare professionals should give you clear information, talk with you about your or your child’s options, and listen carefully to your views and concerns. Your family can be involved too, if you wish. See our webpage on making decisions about your care.

Questions to think about

• How well does it work compared with other treatments?
• What are the risks or side effects? How likely are they?
• How will the treatment affect my or my child’s day-to-day life?
• What happens if the treatment does not work?
• What happens if I do not want to have treatment or I do not want my child to have it? Are there other treatments available?

Information and support

The NHS webpage on haemophilia may be a good place to find out more.

The Haemophilia Society (020 7939 0780) can give you advice and support.

You can also get support from your local Healthwatch.

NICE is not responsible for the quality or accuracy of any information or advice provided by these organisations.

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