Information for the public
Pentosan polysulfate sodium (Elmiron) is available on the NHS. It is a possible treatment for bladder pain syndrome with glomerulations or Hunner’s lesions in adults with urinary urgency and frequency, and moderate to severe pain, if:
- the condition has not responded to standard oral treatments
- it is not offered with bladder instillations
- any previous treatment with bladder instillations was not stopped because of lack of response
- it is used in secondary care.
If you are not eligible for pentosan polysulfate sodium but are already taking it, you should be able to continue until you and your doctor decide when best to stop.
Is this treatment right for me?
Your healthcare professionals should give you clear information, talk with you about your options and listen carefully to your views and concerns. Your family can be involved too, if you wish. Read more about making decisions about your care.
Questions to think about
- How well does it work compared with other treatments?
- What are the risks or side effects? How likely are they?
- How will the treatment affect my day-to-day life?
- What happens if the treatment does not work?
- What happens if I do not want to have treatment? Are there other treatments available?
Information and support
These organisations can give you advice and support:
- Pelvic Pain Support Network, info@pelvicpain.org.uk
- Bladder Health UK, 0121 702 0820.
You can also get support from your local Healthwatch.
NICE is not responsible for the quality or accuracy of any information or advice provided by these organisations.
ISBN: 978-1-4731-3586-4
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