Information about risk of familial breast cancer

If you are concerned about your risk of familial breast cancer, you should be given the following standard written information:

  • risk levels in the general population and in people with a family history, including a definition of family history

  • the message that, if your family history changes, your risk may change

  • breast awareness information

  • lifestyle advice regarding breast cancer risk, including:

    • HRT and oral contraceptives

    • lifestyle, including diet and alcohol

    • breastfeeding, family size and timing of having a baby

  • contact details of those providing support and information, including local and national support groups

  • information about bringing a relative or friend to appointments

  • details about clinical trials or studies that may be appropriate for you to take part in.

If required, you may also receive:

  • advice about how to obtain a full family history

  • information about how your risk will be assessed

  • details of your likely risk of developing breast cancer

  • details of mammographic and MRI surveillance options, if appropriate, including the risks and benefits

  • details of counselling and genetic testing, including what the tests mean

  • information about the risks and benefits of surgery to reduce the risk of developing breast cancer (when surgery is being considered), including both the physical and psychological impact

  • information about the risks and benefits of drug treatments to reduce the risk of developing breast cancer.

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